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Old 03-04-2013, 05:32 PM   #1
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SSI Disability

I am starting the process to apply for disability for my son. Anyone have any insight for me? I have printed off all of the info online and I have called the SS office and made an appointment. From what I hear, it will likely be a long struggle to get approved. If it is ok for me to ask, can I ask how much you receive? I am just wanting to know so that I can decide if the struggle of applying will be worth the money Kwim?

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Old 03-04-2013, 05:35 PM   #2
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Re: SSI Disability

I will pm you but wanted to say make sure you have your pediatrician name, phone number and address on hand, they will ask for that. I don't remember what else, but the amount people receive is not the same but is worth the hassle it takes to start the process.
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Old 03-04-2013, 05:38 PM   #3
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Thank you . Is the amount determined based on the disability or the families income, or both? My biggest problem at the moment is that he literally has had 6 pediatricians and dozens of specialists and therapists. It is very overwhelming.

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Old 03-04-2013, 05:43 PM   #4
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Re: SSI Disability

I believe it goes off income a friend of mine gets ssi for her preemies, and when her dh got a raise, it knocked them into a different bracket and she almost lost the ssi for her girls.
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Old 03-04-2013, 05:44 PM   #5
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Re: SSI Disability

have the name numbers and addresses for each fo the dr's who see your child, it will help speed the process so they don't have to hunt down anyone that si what I did. i had no idea my dd could get ssi, a eci worker I saw told me about it when she was like 6 months old so i applied when she was almost a year.
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Old 03-04-2013, 08:20 PM   #6
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The paperwork I printed off said that I only need the drs and therapists from the 12 months. Would it be better if I got them all?
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Old 03-04-2013, 08:28 PM   #7
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Re: SSI Disability

The amount you receive is purely income based. Whether your child qualifies will be both income and disability based. I can't tell you if the process is worth it or not but my oldest has been on SSI since he was 5 and I wish we would have done it sooner. There are months he gets nothing or next to nothing because of our income but because he qualifies for SSI he qualifies for medicaid for medically dependant children. That has allowed him to receive therapy when dh's old insurance would not cover it (medicaid covers it 100%), covers all his dental work, takes care of any extra doctor bills and hospitalizations (testing can cost $350+ OOP even with good insurance) plus covers his insanely expensive Growth Hormone Injections (would cost us $200 copay a month). I don't care if we only get $10 a month it is worth it for the additional medical coverage because quite honestly we would go bankrupt just trying to cover his medical fees. I am about to begin the process of filing for my youngest. From what I understand we would not receive any more income but he would then be covered medically as well. His medications are killing us, as are his dental bills.
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Old 03-04-2013, 09:15 PM   #8
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Re: SSI Disability

SSI really only pays out a good amount if you are destitute. The real reason people apply is because it gets their disabled child medicaid. Medicaid unlike regular insurance is way more generous with private therapy, if he has private insurance you can kiss the copays goodbye as long as you use a medicaid provider. On a side note IME almost everyone that is affiliated with a true dedicated stand alone pediatric hospital takes medicaid.

The process to determine disability may be simple or may be a hassle. For kids who aren't even close to borderline medically and financially they can give preapproval which means you get the benefits started by the end of the interview process because there is no doubt they qualify.

I honestly didn't find providing documentation that difficult and everything I gave them was stuff I kept in my son's medical folder anyway. If your child has an IEP or IFSP give them that as well. They are looking for documentation of the most debilitating long term disability diagnosis your child has. They really didn't probe for every last ounce of documentation they just needed enough to prove disability.

It has been years since I applied but I know I gave

1. A copy of the therapist wheelchair recommendation letter (proof of mobility difficulties).

2. A copy of his last IFSP and a copy of his current IEP. I wanted to prove developmentally he was progressing very little because they are looking for long term disability so having two evaluations several years apart with very little progress in some areas summed up the developmental aspect nicely.

3 I gave them a copy of his opthamology report. Proof of vision disability since he technically qualifies for the federally funded blind programs.

4. A copy of genetics report. I actually never received my son's copy but had mine and in my report the reason for genetic testing was clearly written by the lab with son's name and karyotype.

These reports were just hitting some of my son's main disabilities and all stuff I had in his medical files already. I could have inundated them with medical records but really they don't want everything they just want enough to prove disability.

As far as getting contact numbers that really should not be difficult just Google your son's past doctors or look up past billing. Unless you haven't bothered to keep any documentation at all it should just be a matter of looking. Believe me the application wasn't hard to fill out it was just tedious pain in the rear but yes worth it a billion times over. Also be aware you have to spend every single dollar of the SSI money they send; no saving it or they will take it back if they find out.

Last edited by mekat; 03-04-2013 at 09:20 PM. Reason: Gross numerous grammatical errors, sorry didn't proof read before posting
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Old 03-04-2013, 09:51 PM   #9
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Re: SSI Disability

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Originally Posted by slyeates View Post
The paperwork I printed off said that I only need the drs and therapists from the 12 months. Would it be better if I got them all?
I would personally follow the 12 month rules but also write in the name of any doctor that may have provided a main disability diagnosis. For example my son's genetic medical records were further out then 12 months but I gave them the contact info anyway because his genetic syndromes are the primary cause of all his disabilities. I do that because it is my understanding they will contact the doctors if the documentation you provided didn't show them enough proof so you want them to have everything they could possibly need.

How it went for us was there was initial phone prescreening to check that income didn't exceed SSI income limits in order to even get an interview appointment, then you were expected to show up at the appointment with the application filled out and supporting financial and medical documentation. After that they may give pre approval. We received pre approval and had the SSA letter to give to medicaid office to get him into the system immediately. If they pre approve him it means the SSA agent has no doubts he qualifies but approval won't be final until the medical review is complete. Even if you don't get pre approval don't freak out Medicaid and SSI financial benefits will be retroactive from the time you made the initial phone call to set up the interview process if your child is approved.
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Old 03-05-2013, 07:41 AM   #10
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Re: SSI Disability

I put every doctor and agency my son saw down. I was approved in less than 2 weeks and got check immediately. I did not have to fight at all.
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