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Old 03-05-2013, 07:54 AM   #11
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Re: SSI Disability

If you haven't started, make your child a notebook. Include copies of any diagnostics, IEP or early intervention plans, etc. It will make it far easier for any of these appointments.

And yes what you get is based on income. We were advised even if we make too much or have too much savings to get money from them on a monthly basis, we should apply formally to make sure its easier for our child when he turns 18. At that point only the child's income will count.

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Old 03-05-2013, 07:55 AM   #12
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Re: SSI Disability

If you haven't started, make your child a notebook. Include copies of any diagnostics, IEP or early intervention plans, etc. It will make it far easier for any of these appointments.

And yes what you get is based on income. We were advised even if we make too much or have too much savings to get money from them on a monthly basis, we should apply formally to make sure its easier for our child when he turns 18. At that point only the child's income will count.
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Old 03-05-2013, 09:02 AM   #13
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Re: SSI Disability

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I put every doctor and agency my son saw down. I was approved in less than 2 weeks and got check immediately. I did not have to fight at all.
Was that for your PDD-NOS son? I'm thinking of applying for my dd. You made it sound a lot easier than I'm thinking its going to be.
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Old 03-05-2013, 09:07 AM   #14
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Re: SSI Disability

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Was that for your PDD-NOS son? I'm thinking of applying for my dd. You made it sound a lot easier than I'm thinking its going to be.
Yes - it was so simple. I thought I would be in for a long fight, but it was very easy as long as you just list all the people your child has seen, even if they no longer do.
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Old 03-05-2013, 09:16 AM   #15
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Re: SSI Disability

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Yes - it was so simple. I thought I would be in for a long fight, but it was very easy as long as you just list all the people your child has seen, even if they no longer do.
It was very easy for me for my oldest as well but this was 6.5 years ago. I have heard it is harder now. I am in TX and never had to meet anyone in person. I sent in paperwork and had a phone interview. Now I will tell you that they treat you like trash on the phone (not in the initial interview but every single time from then on) everyone at medicaid is very sweet and helpful though. That may just be here.
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Old 03-05-2013, 09:16 AM   #16
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Re: SSI Disability

I filed when DS2 was about 7, but husband (now x) made too much money, but DS2 was eligible for Medicaid. This was better than getting a check for DS because his councillor s were not covered by insurance and some of his meds weren't covered either... one med was $400+ a month.
So yes, it is very worth the time.
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Old 03-05-2013, 09:18 AM   #17
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Re: SSI Disability

We get nothing for DS. He qualifies, but we make too much money. We got a lump sum payment from when he was in foster care, but as soon as we adopted him, it got cut off.
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Old 03-05-2013, 09:28 AM   #18
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thank you so much everyone for all of your thoughts! I'm really hope we at least qualify for Medicaid. I am just worried that we make too much money. I was unable to find the pay scale anywhere online, so I'm not really sure where the cutoff is.

I am also in Texas, so hopefully those of you that had an easy time in Texas, will be true for me as well.

As for his diagnosis, he has many actually. I am in a support group with other kids witg his genetic disorder and most (75%) of them are on disability.

Do they take.into.account the amout of money spent on the child per month that would not normally bespent? Like we spend $120 / month on his medicine and $75 / week on therapy, he has to have special drinks and he is not potty trained. The other kids in my support.group potty train around 8-13 years old. we are still in cloth, but bigger actual diapers are big $$$.
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Old 03-05-2013, 09:30 AM   #19
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We get nothing for DS. He qualifies, but we make too much money. We got a lump sum payment from when he was in foster care, but as soon as we adopted him, it got cut off.
This is what I am afraid of... It looks like we make a decent amount, but we have so many medical bills outstanding that we barely make it to the next paycheck.
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Old 03-05-2013, 09:32 AM   #20
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Originally Posted by Queen_Celeste View Post
If you haven't started, make your child a notebook. Include copies of any diagnostics, IEP or early intervention plans, etc. It will make it far easier for any of these appointments.

And yes what you get is based on income. We were advised even if we make too much or have too much savings to get money from them on a monthly basis, we should apply formally to make sure its easier for our child when he turns 18. At that point only the child's income will count.
That is a very goodidea. I wish I had done this since his birth. It would make things so much easier!
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