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Old 03-22-2013, 09:55 PM   #1
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Ccam and bronchopulmonary sequestration

Has anyone been diagnosed with this, who also has a success story?:[ I went for a follow up ultrasound for a Cpc and that disappeared now there is a mass near the lungs which is one of the above. I met with a genetic counselor and am going back every two weeks to be monitored and to further talk to a specialist, as well as meeting with a pediatric surgeon. I feel traumatized, and while it could be worse this is treatable

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Old 03-22-2013, 09:56 PM   #2
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And usually causes no other major health issues after surgery.
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Old 03-22-2013, 10:41 PM   #3
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Re: Ccam and bronchopulmonary sequestration

I've never heard of this...but I hope that you can find some support and encouragement from someone who has been thru it before...I had a difficult and scary pregnancy with my son, and there isn't a more helpless feeling....

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Old 03-23-2013, 08:19 AM   #4
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Thank you:[ it's basically a mass behind the lung that can cause complications etc, and I hope I find some good outcomes.
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