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Old 04-11-2013, 01:41 PM   #21
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Re: So my son just has a seizure......... :'(

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And he did have those wires on the head test 8 months ago. Along with seeing a heart specialist, ear nose and throat specialist, anf some others i cant think off the top of my head right now- theyre in that thread from 8 months ago. And that procedure where thy went in with the tiny camera to check his inner anatomy. They found nothing. Would they repeat all of those tests again 8 months later?
If you want them to, YES. You are the mom, if you need answers, you push until they give you some. I have spent three years fighting for answers, it isn't easy but you have to advocate for your son. If you aren't happy or your questions aren't being answered, find someone who will listen and help.

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Old 04-14-2013, 10:55 PM   #22
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Re: So my son just has a seizure......... :'(

Back to the children's hospital we shall go. Pediatrician referred again.
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Old 04-14-2013, 11:47 PM   #23
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Re: So my son just has a seizure......... :'(

lots of luck and prayers mama
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Old 04-15-2013, 12:05 AM   #24
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Re: So my son just has a seizure......... :'(

Good luck with getting answers. My son recently started having seizures last year and I'm still trying to figure things out. I can't imagine seeing him turn blue and being that young, I'm so sorry you are going through this. I wish you the best!
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Old 04-15-2013, 04:49 AM   #25
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Re: So my son just has a seizure......... :'(

I hope they can get you some answers! When do you go in, or are you already there?
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Old 04-15-2013, 08:04 AM   #26
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Re: So my son just has a seizure......... :'(

Thank you all. He had another episode yesterday with his grandma I was just on the phone with the hospital and he has been referred to ears, nose and throat? That's where he went when he went before at 1 month to 8 months old because he had more of a choking spell. She is contacting his pediatrician now to see who he wants him to see, brain or whatever. I'm not doing so good now I just look at him and he's just so little and I'm trying to be strong but I am scared. When he was there last he had to go under and in a room with a bunch of other tiny babies trying to wake up from anesthesia
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Old 04-15-2013, 08:13 AM   #27
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Re: So my son just has a seizure......... :'(

God will give you the strength for each moment...as you need it. You don't need tomorrows yet. I know this looks big and scary and I will keep praying for you and your little guy
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Old 04-15-2013, 08:30 AM   #28
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Re: So my son just has a seizure......... :'(

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God will give you the strength for each moment...as you need it. You don't need tomorrows yet. I know this looks big and scary and I will keep praying for you and your little guy
Thank you Jen
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Old 04-17-2013, 06:33 AM   #29
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Re: So my son just has a seizure......... :'(

How's he doing, Samantha?
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Old 04-17-2013, 07:18 AM   #30
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Re: So my son just has a seizure......... :'(

He seems fine. Was on the phone with children's hospital and the pediatrician for 2 days going back and forth on where he should go and who to see. He's going back yo the children's hospital at ears nose and throat- where he was last seen. If he gets cleared of hat and everything checks out he will be going to the neurologist next. Appt is Fridayk.
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