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Old 02-21-2014, 04:06 PM   #11
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Re: If you had a LO with reflux

No we never did the tests at all but we also never saw a ped for reflux either. My son has always been overseen by a pediatric GI since day one. All I had to do was tell them he was in pain and they would change the reflux meds. His first GI always starts them on Zantac (H2 blocker) and then would transition to PPI from there if symptoms continue. Occasionally they would combine H2 blocker and PPI for younger kids due to how quickly they metabolize medicine to prevent periodic break through reflux.


Even now they don't require probe testing; my son's issues are still severe (unfortunately not ever child grows out of it). All I have to do is report pain and ask for Rx change and it is granted. I honestly can't think of one time we have ever been denied or told we had to wait. Last week we saw GI and I requested liquid Carafate (sp?) because of tummy aches from reflux and was granted the Rx without question.

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Old 02-21-2014, 04:17 PM   #12
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By "milk scan" do you mean swallow study? My youngest had a swallow study but was already in reflux meds. Zantac is almost worthless as a reflux med. it has to be adjusted VERY often for weight and is alcohol based and burns going down.

Prevacid solu tabs is what his pediatric GI prescribed and it was a godsend. Zantac did nothing for him. His was listed in the severe category. He almost had to have surgery, fundoplication, for it but with his other lug issue it was pushed back and we didn't do it. He outgrew it about 13 months of age.

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Old 02-21-2014, 04:31 PM   #13
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By "milk scan" do you mean swallow study? My youngest had a swallow study but was already in reflux meds. Zantac is almost worthless as a reflux med. it has to be adjusted VERY often for weight and is alcohol based and burns going down.

Prevacid solu tabs is what his pediatric GI prescribed and it was a godsend. Zantac did nothing for him. His was listed in the severe category. He almost had to have surgery, fundoplication, for it but with his other lug issue it was pushed back and we didn't do it. He outgrew it about 13 months of age.

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I think? They have always called it a milk scan. We had to take DS in, strap him to a board, and wait like 20 minutes (him screeching the whole time) to take the MRI. This is after not letting him eat for 6 hours (which ended up being 8 because they were running that behind). Then feed him a bottle with dye in it, wait an hour or something. And do the whole strapping to a board crap again. No thanks, never again. So ridiculous.

He was on axid, not zantac. They're in the same class, I don't know how different they are but it did help ds1 and he never seemed to mind taking it.
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Old 02-21-2014, 04:38 PM   #14
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We did not.

We did a scan at 8 months for DS that showed nothing. But, his subsequent endoscopy showed cobblestoning of the throat due to reflux, so I think the ph probes are bogus.
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Old 02-21-2014, 04:39 PM   #15
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Re: If you had a LO with reflux

My son was diagnosed by symptoms described. Since his symptoms were helped by his frequent nursing pushing the acid down and keeping him upright I was given the option of continuing as we were or taking meds. I chose to skip the meds. His issues I do think were dairy related because once I removed dairy from our diet his reflux resolved itself.
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Old 02-21-2014, 05:05 PM   #16
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Re: If you had a LO with reflux

I should add that DS reflux is hugely affected by his dairy allergy. If I eat something that was cross contaminated he starts projectile vomiting. Zantac has worked great for him, his dose was never increased, but if I try to drop it bu 0.2 ml we are back to square one. I don't know if it's compounded differently here, but he loves it, whereas his prescribed alcohol based iron sent him through the roof and I has to source a water based one.
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Old 02-21-2014, 06:02 PM   #17
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I haven't heard of a milk scan. Is it like the barium swallow? DS1 had awful reflux. Like projectile vomit everywhere. I never knew an infant could throw up so much. DH was born with and still has acid reflux. He has a hiatal hernia and a problem with his gastroesophageal flap valve. Based on the excessive vomiting, the very little weight gain, and family history the pediatrician didn't see the sense in doing a barium swallow study. He said we could if we wanted to, but he was willing to give DS1 medication without it.
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Old 02-21-2014, 06:19 PM   #18
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Ds2 gained super well- and had awful silent reflux because of food allergies. They could hear him "swallowing" at our ped checkup- so they went ahead and prescribed it. (Didn't help much because of the I know allergens) you may cut milk/soy- most times allergies show as reflux (I think you know this??)
Anyways- you may want a new ped! What a hastle! Of course you know what it's like if you've BTDT.
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Old 02-21-2014, 07:18 PM   #19
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We didn't do a milk scan, but at six months they did do an upper GI. My son was a high volume refluxer, though. He also had allergy tests done with a pediatric allergist, had him evaluated for tongue tie, and saw a GI specialist. So while I have no problem with tests and getting to the bottom of the reflux, no way would I do that test you described just to be put on meds!

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No, no test. But after my experience with DD2, I believe 100% that baby reflux is due to food sensitivities. I would encourage you to at the very least eliminate dairy from your diet before doing meds. He's BF, right?
I am not sure how you meant this, that 100% of babies with reflux have food sensitivities or that you are 100% sure that food sensitivities can cause reflux. I will assume its the latter.

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Old 02-21-2014, 07:57 PM   #20
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Re: If you had a LO with reflux

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I think? They have always called it a milk scan. We had to take DS in, strap him to a board, and wait like 20 minutes (him screeching the whole time) to take the MRI. This is after not letting him eat for 6 hours (which ended up being 8 because they were running that behind). Then feed him a bottle with dye in it, wait an hour or something. And do the whole strapping to a board crap again. No thanks, never again. So ridiculous.

He was on axid, not zantac. They're in the same class, I don't know how different they are but it did help ds1 and he never seemed to mind taking it.
You mean this? My son has had that while inpatient in the Special Care Unit. DS went through few years where almost any illness (even mild colds) would set off gastroparesis events which could only be solved through IV fluids and complete gut rest. However I think it is bizarre to order such an invasive test for reflux and the two pediatric GI doctors my son has agree with this, they treat reflux based on symptoms. My son has had a ton of GI testing but zero of those tests were ordered based on reflux. The trigger for testing was always based on more severe problems. Does that make sense? You don't want to do invasive tests unless the problem warrants it and the benefits out weight the risks, hassle and trauma. IMO if your ped wants to order tests I would simply say "I would feel more comfortable with a specialist over seeing the testing if you think the issue is severe enough to warrant those types of tests." You can also skip right over the ped and go straight to ped GI if your insurance doesn't require a referral, although it isn't usually my first recommendation because most good pediatric GI's are booked months in advance and the thought of a little baby suffering in pain that long bothers me.

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