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Old 06-01-2007, 06:55 PM   #1
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Are there any Cleft Parents here?

Just wondering. I have a hard time running across other cleft parents. And most cleft message boards aren't very active.

My son was born with a cleft palate in May 2005. In November of 2006 he had his palate repair. We are now working on his speech, and finding the right speech program for him.

Just curious if anyone else is in the same boat.

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Old 06-01-2007, 06:58 PM   #2
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Re: Are there any Cleft Parents here?

Nope no cleft here, but couldn't just read. My youngest was born with no ears! He also has had some mouth surgery (though just minor) and is deaf (he also has several other issues). Just thought I'd say hi.
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Old 06-01-2007, 07:42 PM   #3
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Re: Are there any Cleft Parents here?

No cleft with my DS, but hubby had bilateral cleft lip and partial cleft palate when he was born. 4 or 5 surgeries (can't remember), from a few months old to junior year in high school, and he looks great and speaks great (won a national championship in college in impromptu speaking!). He had to work on some speech a lot when he was younger, but worked it all out.

(and, not that you're ready to think about this with your DC, but it's fun to kiss him... )

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Old 06-01-2007, 08:02 PM   #4
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Re: Are there any Cleft Parents here?

Yes. I have 2 children out of 5 that have a bilateral cleft lip and pallet! I will send you a PM..
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Old 06-01-2007, 08:04 PM   #5
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Re: Are there any Cleft Parents here?

no cleft here but wanted to say my ds is a HUGE Steelers fan (we're from NE Ohio)
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Old 06-01-2007, 08:08 PM   #6
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Re: Are there any Cleft Parents here?

I was born with a cleft palate and my late dd had the same.
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Old 06-01-2007, 08:10 PM   #7
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Re: Are there any Cleft Parents here?

Not my own but my Godson had unilateral cleft lip and palate. He is 4 and just had surgery on his nose, lip and palate last week. I can't wait to see him. I loved that great wide smile he had when he was a baby.
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Old 06-01-2007, 08:25 PM   #8
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Re: Are there any Cleft Parents here?

thanks for the responses mamas.

sometimes you forget that there are other people facing the same/or who have faced the same struggles you are with your own dc. ds had a bilateral cleft palate. so far only one surgery for him. and remarkably his surgeon did such a wonderful job, you really can't tell he had surgery unless you already knew about it
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Old 06-01-2007, 08:28 PM   #9
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Re: Are there any Cleft Parents here?

my son has a submucousal cleft, he had a lateral cleft lip(macrostomia) repaired on 2-2-07.. and he too was born without ears!!! he is 80% deaf and wears a baha for hearing. he has oral motor therapy as well as speech herepy. feel free to pm me anytime....
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Old 07-01-2007, 04:44 AM   #10
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Re: Are there any Cleft Parents here?

Just saw this thread. My sis had her first baby last week, and they just found out that she has a cleft palette. She is feeding well from the special needs nurser and sis is pumping. She sees the cleft palette team at the Children's Hospital sometime next week. It's all rather overwhelming for sis and BIL. My niece is their first baby.
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