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Old 07-30-2014, 08:03 AM   #1
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Amblyopia/patching

My daughter has to patch half of the day. She has extremely poor eyesight in one eye. She has astigmatism and color blindness as well. Her brain only uses one eye at a time, instead of both together and because she can't see much out of one eye, her brain will shut the vision off in that eye so the stronger one can see for both. This is why we do the patching as well. It is to correct the amblyopia (lazy eye) as well as strengthen the "bad" eye and get it to see better on it's own.
Anyone else dealing with this? My daughter is getting a new script with even thicker lenses to help more with the astigmatism issue.
I'm also having issues with random people saying things in public to her. How do you deal with this? (It's actually not the children so much as we're usually running errands while wearing it, or we have close friends over the house who know about her patching) It's older people, "What's wrong with her eye?" "Why is she wearing that?" etc.

Here she is in glasses and patching:






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Old 07-30-2014, 08:35 AM   #2
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Re: Amblyopia/patching

You go her some great patches DS only needs his 2 hours every other day to get his "weak" eye working a little better. So we haven't dealt with public much. If we do, we call it pirate day that seems to have worked fine for him. But then again, we are mostly around kids at sports practice. Too.
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Old 07-30-2014, 12:10 PM   #3
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Re: Amblyopia/patching

Holy cow does she have gorgeous blue eyes! That may be the reason people notice

A close friend of mine death with it growing up. She still has significant problems. And now her two kiddos have issues. One is done patching and the other still is. My oldest's eyes didn't sync up when they were supposed to as an infant. We saw one specialist who thought we should patch but since he was so tiny he sent us to another specialist and in those two months his eyes started coordinating and we didn't need to patch. I remember the anxiety I had thinking he would need a patch.

I'm familiar with the random people comments. My youngest is profoundly autistic and will often have headphones on. I also have to try to explain why he doens't talk and other behavior issues that come up, or even why he still likes babyish stuff.

Try to think of some standard phrases. For awhile I had to remind myself that it is natural for people to be curious and some people's curiosity comes out accusatory. Now its really not that hard for me to handle whatever people might say. I think I am less anxious over it all so it is easier for me to be patient. I always shoot for the simplest explanation, whether its adults or kiddos asking. I'm not sure what I would say. "To help her right eye get stronger" "To let her left eye get a break" Maybe "Her doctor gave her this to help her eye get stronger." For a really curious kiddo I might start asking them what kind of patch they would want. I turn the conversation like that with kids fairly often, especially if we are at the park and I can't escape them

Most of the time when I can tell someone noticed ds's issues I simply pat him on the head or back and smile at them, my "thanks for understanding" smile.
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Old 08-01-2014, 08:29 PM   #4
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Re: Amblyopia/patching

My husband has amblyopia and so do two of our sons. Our boys both patched up until ages 8-9 when the doctor said we had gotten the most benefit out of patching that we could. People would comment, (and still do about DH, sometimes asking me which eye they should "make contact with" when talking to my DH). The boys would answer for themselves when it came to questions about patching, just by saying that it was helping the other eye get stronger. They were comfortable speaking for themselves and I think it helped for them to answer; they took ownership and demonstrated confidence; nothing silences tough questions better than personal confidence. But often we were able to avoid it altogether by patching at different times of the day, based on when we were home, so they didn't have to go out patched every single day.

We found adhesive patches were the most effective and they were not as obvious because they are worn under the glasses (our boys were always peering around the fabric type patches). Building legos, drawing, etch a sketch, and reading while patched all helped strengthen the weak eye more; fine motor is better than large motor for this.

DS1 amblyopia is fully corrected now with just ordinary glasses; he is actually considering getting contacts now that he is entering Jr. High. DS2 has one very thick corrective lense and one lesser lense with his glasses, to continue to encourage the weaker eye to work harder. My biggest fear was that it would interfere with school so at first I always mentioned it to the teachers at the start of the year, but now I don't even say anything, unless there is an eye exam. Both boys are excellent readers and advanced academically; they learned to work around it both in the practical sense and socially.

**I just came across two un-opened packages of adhesive patches today (lizards and one other boy print) plus a felt airplane patch; if your DC could use them, feel free to PM me and I'll send them to you FFS!
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Old 08-03-2014, 07:36 AM   #5
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Re: Amblyopia/patching

Thank you for the kind words/advice. TinyMama i'll be PM'ing you.
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Old 08-03-2014, 07:43 AM   #6
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Re: Amblyopia/patching




Violet in her "patchy"
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