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Old 07-24-2006, 11:53 PM   #11
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Re: Optional testing?

I didn't really know much about it with my twins and though my dr warned me it often comes back wacky with twins b/c of due date innacuracies and such, I took it anyway. I never even got the results back and never thought anything of it. With my 3rd I was more educated on my body and what they were doing that wasn't truly necessary. I made it clear from the get go that I did NOT want it. I never got the results previously and wouldn't abort anyway... BIG MISTAKE! Towards the end of my pregnancy I had the worst anxiety and these horrible nightmares about what the test would have told me. UGH, it wasn't fun. I finally gave birth and he was a-ok but I ended up with a bunch of problems and I think that my anxiety was about that, but I was using the test as an outlet for my worrying. I had the test with my other 2 pregnancies after. I just don't think I'd have an amnio unless my Perinatologist highly recommended it which would mean it was on the higher side of the chances and for a good reason. I don't see anything wrong with the test, its only a wee bit of blood and it can really save you a lot of worry. I knew a girl in my March 2002 board who also was going to refuse the test and ended up getting bullied by her nurse as to why and just went and did it at the last minute. It ended up being that her son had Mosiac Trisomy which is something VERY rare! She was so upset that she almost DIDN'T take the test. It would have been obvious down the road as he had severe IUGR and was only 1.5 lbs at 34wks! I'm not trying to scare you, but there is always a chance and I'd personally rather know my chances (which is ALL the test tells you!) prior than not know until after.You don't have to have an amnio if your results come back out of whack, the blood test itself is so minimal.

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Old 07-24-2006, 11:59 PM   #12
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Re: Optional testing?

Quote:
Originally Posted by Shannon
Then another reason for me was that regardless of the outcome, I wasn't going to do anything about terminating the pregnancy. So it didn't matter. I know that some chose them so they can plan ahead for the defects, but I think I would react oppositly and start the worrying when there was nothing I could do about it at the time....so it was mostly just for relief on my part.

This is exactly how I felt. No matter what I was keeping what God had given me regardless of the condition. I believe strongly you never get more then you can handle!

ETA: I had a great DR. he was very pleased with me when I told him no. He said "that is the answer I like to hear"
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Old 07-25-2006, 12:18 AM   #13
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Re: Optional testing?

I had the tests with both of my kids, but honestly it never crossed my mind to not have them at the time. My first was normal, and so when it came time to do it with my second...I guess I just assumed. I actually never thought I would be faced with it being abnormal. It was, and very much so. It came back as like a 1 in 19 chance for downes syndrome. I chose not to have the amnio and had level 2 u/s and was monitored weekly in the last month of my pg for the baby's heart. I was so stressed out that I couldn't think straight afterward. It ruined my pregnancy. I couldn't enjoy it for worry. So I would say, if I was to ever have another child, then I would not take the tests. I regret haveing it done. Knowing wouldn't have changed anything. God gave me this child for a reason, no matter what. She didn't not have downes, or any other genetic condition.
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Old 07-25-2006, 02:19 AM   #14
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Re: Optional testing?

I would opt out if it were entirely up to me. I was seing a perinatologist with my son so she really wanted me to get it, and then it was positive...but all was well with him. So this pregnancy I decided not to get it (note:we had been through all the genetic couseling/testing rigors to the tune of 18 viles of blood each with DS pregnancy), but DH sweet man that he is said for his piece of mind that I should get it. So, for his peace I did...and it came out fine.
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Old 07-25-2006, 02:49 AM   #15
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Re: Optional testing?

I did do the "triple screen". I would still keep the baby if there were problems, but I think I would want the time to prepare myself if there might be some type of disability. Fortunately everything worked out fine.

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Old 07-25-2006, 04:35 AM   #16
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Re: Optional testing?

I opt out of all prenatal screening tests. I decided long ago that if my baby had a serious problem, I would rather spend nine months loving my growing child that stresssing about how I was going to lose him right after birth. And minor problems--well, those we can deal with

I knew someone who found out that her baby had a big chunk of it's spine missing and huge skull deformities while pregnant. Her remaining pregnnacy wasn't spent enjoying her baby being alive inside her, but basically planning her baby's death. IT was very sad, imo. Of course, it would be a HUGE shock to deliver a baby with serious, life-threatening abnormalities, but I'd just rather not know.

I also woudn't even consider in-utero surgery...so if it was something that could be fixed ahead of time, I couldn't do it. I strongly believe, as hard as it is, is thta if you take care of yourself and still have a baby who isn't going to make it, there is a reason you were given the job of carrying this special little life. After being around so many pregnant and new moms in the last years, I have really come to very strongly believe that some babies aren't born to live their lives, but to help us learn in ours. IT's very sad, and I know not many agree with me, but that's what I believe.
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Old 07-25-2006, 05:16 AM   #17
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Re: Optional testing?

I have always gotten the triple screen tests done but mainly because I have to go in to get my other levels (thyroid and iron) done as well. I have never gotten a positive but I can guarentee you it wouldn't change my mind or make me go for additional testing. With dd tests came back positive all the time and I went to one specialist to talk about additional testing and that is what made me realize it didn't matter. That doc was pushing for an abortion and I got up and left. I was still closely monitored (not because of possible birth defects) and I gave birth to a healthy baby. Imagine had I been a weaker woman and aborted my baby.
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Old 07-25-2006, 05:57 AM   #18
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Re: Optional testing?

This can be a touchy subject in our house!! I won't get emotional on you or anything so don't worry. We have two children and have never tested. Our youngest son however has Spina Bifida. It was not spotted on the sonogram, and we did not test. Therefore it was a total surprise. I will tell you my opinion of this simply becuase I have gone through having a child with Spina bifida who is now, by the way, three months old. Now this is just my feeling on it, there are others in my position who feel differently. I would hands down refuse the test again if I could go back, and will refuse if we choose to have more children. I had my son naturally...ugg! He was 9 1/2 pounds! It was stressfull that they gave him to me noticed his back and took him right away. They did not try to freak me out. They simply said I would like the pediatrician to look at his back. He came in looked at baby and then talked to my husband. Then, they told me. He said there is no need to worry as of yet, but I need to get him transferred to another hospital. Three hours later he left in an ambulance. Thankfully I had him naturally becuase the next morning they released me and I went to see him. By no means was any of this easy, but I really don't think worring about it while I was pregnant would have made it easier, in fact I am sure I would have been more scared than ever!! For my husband and I the outcome of the test would have never changed our mind to have our son, so we figured why have it! Yes, it can help the medical staff prepare etc, but it wouldn't have helped us! I have no opinion of people who test or who don't test. My friends sister-in-law and her husband found out their child had spina bifida when they were pregnant and they terminated. That decision would not have been an option for us, but I am not going to judge them for it. I think everyone has to do what is right for thier family! I do get upset when people judge us for our decision, I think they forget that is was OUR decision.
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Old 07-25-2006, 06:42 AM   #19
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Re: Optional testing?

Quote:
Originally Posted by stephaniehauser
This can be a touchy subject in our house!! I won't get emotional on you or anything so don't worry. We have two children and have never tested. Our youngest son however has Spina Bifida. It was not spotted on the sonogram, and we did not test. Therefore it was a total surprise. I will tell you my opinion of this simply becuase I have gone through having a child with Spina bifida who is now, by the way, three months old. Now this is just my feeling on it, there are others in my position who feel differently. I would hands down refuse the test again if I could go back, and will refuse if we choose to have more children. I had my son naturally...ugg! He was 9 1/2 pounds! It was stressfull that they gave him to me noticed his back and took him right away. They did not try to freak me out. They simply said I would like the pediatrician to look at his back. He came in looked at baby and then talked to my husband. Then, they told me. He said there is no need to worry as of yet, but I need to get him transferred to another hospital. Three hours later he left in an ambulance. Thankfully I had him naturally becuase the next morning they released me and I went to see him. By no means was any of this easy, but I really don't think worring about it while I was pregnant would have made it easier, in fact I am sure I would have been more scared than ever!! For my husband and I the outcome of the test would have never changed our mind to have our son, so we figured why have it! Yes, it can help the medical staff prepare etc, but it wouldn't have helped us! I have no opinion of people who test or who don't test. My friends sister-in-law and her husband found out their child had spina bifida when they were pregnant and they terminated. That decision would not have been an option for us, but I am not going to judge them for it. I think everyone has to do what is right for thier family! I do get upset when people judge us for our decision, I think they forget that is was OUR decision.
My husband has spina bifida so this is one reason we do test. Not that it would make any difference but like you said, good for the medical staff to know. Dh also has a cleft lip and pallet so we watch that as well. While hte results of the testing would have no affect on my decision to have the baby I feel it is good to have an informed staff ready and waiting int he wings.
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Old 07-25-2006, 06:58 AM   #20
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Re: Optional testing?

well, i guess i'm going to read up on the testing again and see if i still feel the same way. i think one question i have is whether the test misses some people who ought to be "caught".
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