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Old 05-01-2006, 01:37 PM   #11
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Re: Please pray/ think of us, Miss Coglette isn't well

I will be praying for you and your DD. I wish there was some thing I could do to help you take the pain away.

((((HUGE HUGS)))))

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Old 05-01-2006, 02:08 PM   #12
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Re: Please pray/ think of us, Miss Coglette isn't well

You and your little one are in my prayers. I know how hard it is for a mother to see her child in pain. If you need help with anything I'm always here.
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Old 05-01-2006, 02:19 PM   #13
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Re: Please pray/ think of us, Miss Coglette isn't well

You and your family will be in my thoughts and prayers. Stay strong mama!!!
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Old 05-01-2006, 02:24 PM   #14
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Re: Please pray/ think of us, Miss Coglette isn't well

Best wishes to Miss Coglette & family...hugs Mama!
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Old 05-01-2006, 02:43 PM   #15
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Re: Please pray/ think of us, Miss Coglette isn't well

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Old 05-01-2006, 03:48 PM   #16
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Re: Please pray/ think of us, Miss Coglette isn't well

WOW!! This is the EXACT same thing that happened with our second dd.

She was born with Torticolis but we didn't know she had it until around 2-3 months old. I noticed she only wanted to turn her head one way and she would cry if you tried to turn it the other way. I also begin to notice a flattening on one side and a bulging on the other. We went into the doc and he told us we needed to do daily therapy to help the Tort because we lived way far from a PHY. Therapist but also told us we needed go 4 hours away for a better look at dd's head. He thought she might have Craniosynostosis (the premature fusing of the skull)
Of course we were crying and freaking out.

We headed to the doc and they said we needed to go to Dornbeckers (A leading hospital in Childrens Medicine) and have a Cat-Scan done. So we drove another 4 hours for that and it was horrible waiting to find out what was wrong with our baby girl and having her put under for the Cat.

They took the Cat-Scan and they thought she didn't have that very rare condition and we talked about the helmet thing but the doc wasn't a big fan of those. His daughter also had the exact same thing ours did and his daughters rounded out nicely. He thought our dd's head would shape out at least 50% better without a helmet so we left it at that.

Now with her hair long you can't tell its kinda mishapen but if you give her a bath you can tell it goes out more on one side.

Sorry for the long post but I just wanted to let you know you're not alone.

I'll be saying a prayer for you.

I do know Craniosynostosis is rare and I remember scouring the web for info and coming across all those horrible pics. Not really the best thing to do, just made me worry more.

I''ll be praying.

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Old 05-01-2006, 04:27 PM   #17
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Re: Please pray/ think of us, Miss Coglette isn't well

Wishing you the very best. I hope things go well for Coglette. Cograts on your DH's promotion!

Hope you all come through this rough patch well.
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Old 05-01-2006, 04:29 PM   #18
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Re: Please pray/ think of us, Miss Coglette isn't well

Oh so sorry to see this. Thoughts and prayers are with you. My dh has the skull thing. I actually didn't know what the technical name for it was but that is exactly what he had done as a young infant with the steel plate in his head. Its a little mishapen but not bad and in a girl would hardly be noticable. So aweful though that she is in so much pain. Praying for you!
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Old 05-02-2006, 07:38 PM   #19
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Re: Please pray/ think of us, Miss Coglette isn't well

We got an appointment the 11th at Shriner's Hospital. It's the best place for her to be at this point. They can do her therapy there and any procedures, if necessary. They are an amazing hospital and we are VERY lucky to be able to go there.

I will post more when I know more....waiting stinks
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Old 05-03-2006, 03:24 PM   #20
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Re: Please pray/ think of us, Miss Coglette isn't well

Wishing you the best, she will be in my prayers.
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