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Old 09-29-2008, 06:21 PM   #161
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Re: NEW UPDATE # 127 (Hugs to everyone) Bulging fluid at base of head/down syndrome?

Thanks again to everyone for the wonderful gestures of support and well wishes, as I've mentioned... it really means a lot.

Things will hopefully get better slowly and time will still move on with my 3 wonderful children. DH and I often talk about the future and may let nature takes it's course and see what happens... God has blessed us secretly 4 times already and he just might be waiting to give us another. We feel it wouldn't be quite right to have DH get his vasectomy yet since God may have done this in order to send another that needs us. My DH feels so strongly about this that we feel it may just be true... guess only time will tell. We aren't going to try as have never 'tried' for any of our children, but after my body heals in a few months we will just be loving and natural and see what happens. Either way, we are fine with another baby or not. There is lots of love and chaos already around here.

And just to address someone who mentioned that encepholoceles aren't alway fatal.. there are rare instances where minor ones can be fixed through surgery. But when they are in the location my babies was in, as large as my babies was, there is just no chance for survival. I assure you we were at the top genetic hospital we have here and talked at length with several different specialists with all giving us the same end result. Let your pregnancy go further and the baby will not make it past 23 weeks. But then the baby will likely pass on in a more painful way. So we did the only thing we could, let our little one go through induction. Most don't choose this due to the pain involved for mom, but I didn't care because a DNE would do things to the baby I didn't want done.
Anyways, I just wanted you to know there really was no chance for survival. I said just give me a 5% chance he/she can make it, even with severe brain damage and I'll keep this pregnancy and let the baby have a chance. But that was not the case.

to everyone... again you are a great group of women.

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Old 09-29-2008, 07:12 PM   #162
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Re: Update: #162 (Hugs to everyone) Bulging fluid at base of head/down syndrome?

Jennifer.
I was induced w/Gracie --very gut wrenching,horrid decision.We chose to say goodbye and let her go to God.She had severe anencephaly and was not expected to make it the rest of my pregnancy,or if she did--she would not survive the birth.I didn't want my preciose baby to suffer.I also faced complications w/a pregnancy w/an ancelephic baby.
It was not a decision we made lightly or a knee jerk one based on the diagnoses we were given at my 18 week level 2 u/s.Believe me we grilled the Perinatologist,my Ob and asked all the questions.It just was so devastating.
No mama should have to learn their baby has a horrible not compatable w/life outside the womb birth defect and KNOW that the preciose baby so loved and wanted will be born to heaven.The if onlys still get me.
I so admire your strength Jennifer.It's been 15 months and I still struggle... It's a club no mamma ever wants to join.

I pray and have hope and faith that you and your family feel comfort and love.Also peace and healing.Pm me if you want to talk or need anything.
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Old 09-29-2008, 07:50 PM   #163
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Re: Help needed! 13 week appt. today..bulging fluid at base of head/down syndrome?

I am so so sorry. You and your family will be in my prayers, of course.
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Old 09-29-2008, 09:47 PM   #164
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Re: Update: #162 (Hugs to everyone) Bulging fluid at base of head/down syndrome?

I'm so sorry, mama, you should never have to feel like you need to explain your decision as it's clear it was a wrenching one. In cases like this, there are no good answers, only bad outcomes, and one has to decide between bad and worse. We too lost a baby earlier this year to an NTD (neural tube defect) that they found when she delivered prematurely at 20wks.

My heart is with you and your family. I know these first few days are rough, especially with your complications. As for future babies, I just have to say heal your body first, then go with your heart. Good luck, and may your family and friends be supporting you as you need to be supported.
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Old 09-30-2008, 03:55 PM   #165
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Re: Update: #162 (Hugs to everyone) Bulging fluid at base of head/down syndrome?

Jennifer, you have been and continue to be in my thoughts and prayers day and night since I first read this! You are an amazing and strong mom.
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Old 09-30-2008, 04:17 PM   #166
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Re: Update: #162 (Hugs to everyone) Bulging fluid at base of head/down syndrome?

I'm so sorry mama!!! You and your family are in my thoughts. ((hugs))
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Old 09-30-2008, 06:16 PM   #167
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Re: Update: #162 (Hugs to everyone) Bulging fluid at base of head/down syndrome?

So sorry about this mama. You are in our thoughts. Kudos to you for having the strength to do what was best for baby.
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Old 10-01-2008, 04:45 AM   #168
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Re: NEW UPDATE # 127 (Hugs to everyone) Bulging fluid at base of head/down syndrome?

Quote:
Originally Posted by Sew Crafty Baby View Post
Thanks again to everyone for the wonderful gestures of support and well wishes, as I've mentioned... it really means a lot.

Things will hopefully get better slowly and time will still move on with my 3 wonderful children. DH and I often talk about the future and may let nature takes it's course and see what happens... God has blessed us secretly 4 times already and he just might be waiting to give us another. We feel it wouldn't be quite right to have DH get his vasectomy yet since God may have done this in order to send another that needs us. My DH feels so strongly about this that we feel it may just be true... guess only time will tell. We aren't going to try as have never 'tried' for any of our children, but after my body heals in a few months we will just be loving and natural and see what happens. Either way, we are fine with another baby or not. There is lots of love and chaos already around here.

And just to address someone who mentioned that encepholoceles aren't alway fatal.. there are rare instances where minor ones can be fixed through surgery. But when they are in the location my babies was in, as large as my babies was, there is just no chance for survival. I assure you we were at the top genetic hospital we have here and talked at length with several different specialists with all giving us the same end result. Let your pregnancy go further and the baby will not make it past 23 weeks. But then the baby will likely pass on in a more painful way. So we did the only thing we could, let our little one go through induction. Most don't choose this due to the pain involved for mom, but I didn't care because a DNE would do things to the baby I didn't want done.
Anyways, I just wanted you to know there really was no chance for survival. I said just give me a 5% chance he/she can make it, even with severe brain damage and I'll keep this pregnancy and let the baby have a chance. But that was not the case.

to everyone... again you are a great group of women.
continued prayers and I wanted to add that you really did not have to justify the choice you made. it is no ones business why you did what you did, anyone who would try and put themselves in your shoes might understand what a difficult yet necessary decision this was. NO ONE has the right to judge you.

Take care of yourself and maybe hopefully down the road we can look forward to another announcement?!
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Old 10-01-2008, 05:23 AM   #169
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Re: Update: #162 (Hugs to everyone) Bulging fluid at base of head/down syndrome?

I am so sorry mama!
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Old 10-01-2008, 08:12 AM   #170
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Re: Update: #162 (Hugs to everyone) Bulging fluid at base of head/down syndrome?

many prayers for you mama....
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