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Old 12-06-2008, 06:34 PM   #1
BleedingBlack
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Proving to the Pedi (Asthmatic)..

I am hoping some of you can help me out here...

I have a 3 month old DD that has had breathing issues since about 3 weeks of age (when I first noticed)...all the typical 'asthmatic' type... but it isnt constant. One of the things she does is every day, at random times, is breathe in but seems to have trouble breathing out...she chest will sink in, then flare out, she has a night cough, congestion, she has already had a cold, and will make raspy breathing while asleep, etc. I changed her sleeping position to more elavated as her pedi suggeted.

However, her pedi is stumped and refuses to send her to a specialist for further exam because she believes she is fine because she "sounds clear". ...That's great, but that doesnt explain what is going on.

I was most likely born with asthma, but diagnosed with chronic asthma at the age of two. My mother went through a very similar experience with me that I am now going through with my daughter.

The pedi sent us home with Albuterol liquid form but that's it. Nothing more was said. I am nothing new to asthma...after the hell I went through with mine growing up, my family and I educated ourselves as much as possible because this is genetic in our family & a very strong gene....it hits almost all the girls and some of the boys. It so far has managed to skip my oldest so far. I am also going into Resp. Therapy at school.

I know I am not crazy. I know there just isnt something right, but what can I do to prove to my daughter's pedi that I'm not wrong? I think they are scared to diagnose her so young.

We have already had three episodes where she had issues breathing...asthma attack like. The last one which landed us in the ER and completely stumped two pedis as to what was going on because it comes in waves then she will clear back up (as I also did when I was younger). One of the pedis told me it's most likely Reflux and Childhood Asthma. But my daughter's pedi blew it all off as nothing because she sounded just fine at the time.

I know this is more of a vent then anything...I'm very frustrated. But I would like to know what your child was doing that gave you the red flag that something was wrong?

I may video tape her breathing issues to prove to her pedi that something isnt right. I dont know what else to do.

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Old 12-07-2008, 11:31 AM   #2
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Re: Proving to the Pedi (Asthmatic)..

Do you need a referral to see someone else? I'd try to get to an asthma doc.
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Old 12-07-2008, 12:21 PM   #3
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Re: Proving to the Pedi (Asthmatic)..

DS1 was the same way. by the time i got to a specialist a few years later, the specialist was not happy about pedis giving out scripts for liquid albuterol b/c it is harder on the body and not as effective. i would change pedis if he won't at least refer you to an allergist or other specialist. sometimes dr.s aren't compatible with your families needs. it has taken me years to find a pedi that actually listens to me and my children.
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Old 12-07-2008, 04:52 PM   #4
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Re: Proving to the Pedi (Asthmatic)..

I think that your idea of videotaping the episodes sounds like a great idea. I don't see how your pedi could argue with a video (especially if you had a few different episodes on tape before the appointment). Good luck!
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Old 12-07-2008, 10:34 PM   #5
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Re: Proving to the Pedi (Asthmatic)..

Thank you ladies! ...Yes, DD has to have a referral to the Asthma & Allergy Department. I have a number to a Pulmonary Lab though that I think I will contact to see if they have any advice to give. I think I may try a pedi down by our hospital if I can...but because the pedi wouldnt be her primary care doctor, I dont know if that'll stall things. ...The other bad thing is... there are only two opinions for pedis at our medical offices up here and with DD #1 (she was preterm)...the other pedi and I didnt get along well.

I have been recording the out-of-norm sounds my baby is making and documenting as much information as possible. She hasnt had an attack as of late, but I am getting prepared to record anything that may come.

I was talking with my mom tonight and she said that watching me go through this with my daughter has sent her into flashbacks with me. My mom is also pretty good at being demanding, so maybe it will take her and I pushing the issue together. I'm willing to have her help me out since she has been through this.
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Old 01-07-2009, 10:37 PM   #6
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Re: Proving to the Pedi (Asthmatic)..

I went through the same thing with my DD. I knew from the time I took her home something wasn't right. She stayed sick with a cold all the time could not breathe. I took her to the doctor at least once a week and to the ER quite frequent. At 4 months old yes it took that long. They finally told me she has asthma. I stayed up all night long in fear that she would quit breathing. Keep fighting for her and listen to your gut feeling you are her best care taker.
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Old 01-08-2009, 09:04 AM   #7
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Re: Proving to the Pedi (Asthmatic)..

So sorry to hear that. The thing that finally got us in to see an allergy/asthma specialist was pulling him out of 2 different pediatricians offices and taking him to a family doctor/primary care physician I was using for myself. The guy took one look at my little man and said he's got problems. The repeated breathing/coughing attaches, congestion, wheezing, etc. had been going on for long and the pediatricians kept tossing it as he just had a cold and that's what babies are going to do.

he's on daily breathing treatments, allergy meds, sinus/nasal spray....and occasionaly he needs a steriodal treatment when it gets really flared up in his lungs and chest area. I hate all the meds but it drastically decreases the amount of trips we have to take him to see the doctor
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Old 01-08-2009, 09:13 AM   #8
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Re: Proving to the Pedi (Asthmatic)..

This sounds like my life, down to the the discussion I had with DS's doctor yesterday...except that DS is still in the NICU, so it's even more complicated.

Hang in there, and keep looking for a doctor who will listen to your statements that there is something wrong and that there is a family history of all this. Good luck!
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Old 01-08-2009, 10:38 PM   #9
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Re: Proving to the Pedi (Asthmatic)..

Thank you so much ladies!!

My DD had a rough month last month. Total we gave her the albuterol 4 times to control her breathing. Today she was having a bit of a rough time, but it cleared on it's own.

I am making her 4 month appointment tomorrow, so hopefully her doctor will listen to me this time and not think i'm just crazy. All her doctor does is listen to her and tells me she is fine. ...This bugs me because my mother told me that doctors would do this to me also before my diagnosis. And the fact that my family history has no affect is unbelievable!

I will keep everyone posted on any progress we make.
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Old 01-09-2009, 08:03 AM   #10
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Re: Proving to the Pedi (Asthmatic)..

oh, and it might help to call them for an "emergency" appt when your DD is having issues breathing. Of course she sounds clear when she's not having an attack
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