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Old 04-27-2009, 07:45 AM   #1
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"Medically challenging" son, worried for nothing? Should I seek specialist?

My 17 month old son has always been "medically challenging" since birth. He has neonatal infantile convulsions(inherited baby seizure) from inside my womb to 5 months when we got him on phenobarbitol. He just got weaned off of that last month. No seizure-keepng fingers crossed!
He has had a penis ulceration. Now has 3 weeks straight of inflammed "intact" tissue with various RX cremes & boiling cloth dipes & nakey time & Aveeno baths nightly.
Every single time he gets a cold(like now), he can't just get the booger nose, coughing, and sneezing. He has to have breathing treatments every 4 hours and the humidifier running 24/7. We always end up going to the ER at least once during every single illness because he just can't breathe.
I'm really getting concerned that something is wrong with his immune system or has asthma or something.
His peed says not to worry, that his lungs are okay and that he is just "sensitive" to germs. That he will grow out of it once he is 4 or 5.
But it worries me. Everytime he gets the sniffles I think "Here we go again." 2 weeks of intensive care & awful feeling baby.
I do home daycare and had to go PT because he has so many medical issues & dr appts.
I know this sounds even weird for asking, but do red heads have more sensitivity to allergens & germs? He's the only red head in our family. Other people have told me red heads have these issues.
But people say alot of things that aren't true and just rumor. So I don't know.
But should I try seeing a respratory specialist? His lungs just don't seem right.


Bye bye.
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Old 04-27-2009, 09:13 AM   #2
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Re: "Medically challenging" son, worried for nothing? Should I seek specialist?

I don't know about the red head thing, but I don't see any harm in going to see a specialist. Your ped might be right, but a second opinion certainly can't hurt.
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Old 04-27-2009, 10:42 AM   #3
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Re: "Medically challenging" son, worried for nothing? Should I seek specialist?

With so much happening and so much care needed to treat the sickies, I would check into a specialist.
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Old 04-27-2009, 11:01 AM   #4
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Re: "Medically challenging" son, worried for nothing? Should I seek specialist?

(nak) see a ear/nose/throat dr. my oldest had very similiar issues, almost died at 9 wks of pneumonia and then at 11 mos of a blood infection, was always getting colds and the croup..after 1 really bad nught of "croup" where he could not breathe at all we finally got a referra to ENTl..had his adenoids out at 3.5 yrs old and after that he was never sick..went from constant runny nose/raspy breathing to perfectly healthy. dr said his adenoids were twice the normal size and all the gunk coming out of his nose was coming straight from his adenoids...the constant adenoid/sinus infection also made his immune system weaker, making it harder to fight off other little infection and thus sick all the time or getting infections from little scrapes

right now my youngest 3 all have the crud, temps around 101, croupy cough, snotty, etc but the oldest hasn't had it at all. he no longer gets colds, he still gets the flu but it only lasts a couple days while the rest of us are down for a wk or more. I would seriously recommend an ENT consult first and then go from there. the difference in ds is truly amazing.
wife to J. 02/04/02 , SAHM to A. (9) , W. (7) , J. (5.5) , JJ 11/13/08, 10 lbs 3oz, 21.5 inches
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