View Poll Results: Would you still nurse?
Yes 9 27.27%
No 13 39.39%
Half/Half 4 12.12%
Other 7 21.21%
Voters: 33. You may not vote on this poll

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Old 08-05-2009, 11:38 AM   #1
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update, made decision post 24

Okay, so there is an issue now. I got the go ahead to nurse when my son was born because his carnitine levels were low range of normal so the extra carnitine he would get through my breastmilk (I take a prescription carnitine for a FOD and it is excreted in my breastmilk) wouldn't hurt him and actually help him get his levels back up to normal. Welll, now that he is older and he is able to keep his levels steady I have been giving him a lot of extra. He has been having horrible tummy upset and just cries like crazy. (These pains hurt like labor pains, I have had them before as a side effect from the liquid meds so now I am on the pills) He has been upchucking, sometimes just gagging, sometimes throwing up. (He has been doing that from 1week old on but the Ped. told me it was probably my diet, but clearly it isn't now). The med I take has never been studied in breastfeeding moms and has no classification if it is safe or not. (The med I take is called Carnitor) I called the specialist and she said she cannot give me advice because it will make her liable, that I need to do what I feel is best for my child. So, if in my situation what would you do?

ETA: Did a poll so people that don't want to answer with words of advice can do it without people knowing their response.


*Tarah* "Mom-ma" to Dallas Oct. '07 & Coen June '09
Missing their Daddy who is currently deployed

Last edited by tarah1218; 08-06-2009 at 01:07 PM.
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Old 08-05-2009, 11:46 AM   #2
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Re: Would you still nurse in my situation?

I said other, I think that since Carnitine is present in some foods that you eat I would avoid those foods and just take the supplement and try nursing him and see if it improves his discomfort, if not then maybe nursing isn't the best option for you and your baby. However since it is in things like dairy and red meat maybe you could try eliminating those things for a week or so and see if he improves? Just my two cents worth.
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Old 08-05-2009, 11:46 AM   #3
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Re: Would you still nurse in my situation?

mmmmm IMO a Dr should be able to tell you if the med is OK to take or not. Maybe try calling a lactation consultant to find out. What is an FOD?
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Old 08-05-2009, 11:47 AM   #4
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Re: Would you still nurse in my situation?

Personally? No. Not if it's giving him labor like cramps. And add in that they don't know if it's safe or not...

I know this is the "breastfeeding support" forum but there are times that it's ok to formula feed and I have to believe this is one of them. If what you are giving him is putting him in pain, it's not fair to him. Just my two cents.'s hard to make these descisions for our LOs...
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Old 08-05-2009, 11:48 AM   #5
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Re: Would you still nurse in my situation?

I voted other. I guess if it was me, I'd try to find another, safer med and if that didnt' work I'd idealy switch to donor breastmilk. But I realize that is easier said than done. Tough call for sure.

Good luck whatever you decide!
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Old 08-05-2009, 11:48 AM   #6
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Re: Would you still nurse in my situation?

Have you tried offering something else to be certain it's your milk bothering him? It would make me nervous breastfeeding with an unknown medication. But I would research and decide if I was comfortable with it. I think it's a personal choice. But if the medication is affecting him, no I would not continue to nurse. Could you try offering him formula while pumping to see if it alleviates the problem? I would hate to stop nursing only to find that it's colic or something else, not your milk. Also can you take less meds and be ok? Maybe that would help? Idk. good luck, I hope you quickly find what is best for your family.
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Old 08-05-2009, 11:49 AM   #7
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Re: Would you still nurse in my situation?

If I were sure it was the med causing the problem, I would try to get donated breastmilk...a lot of mamas say they would donate in the case of a medical problem such as yours. I looked into donating last time I was nursing because I had a TON of milk.
Or even set up a contract to *buy* breastmilk.

Lacking that, I would go ahead with formula (NOT SOY!). I would be concerned about the medication for sure, especially since it hasn't been tested. (they don't test meds on preg/nursing moms or infants...but things like my Zyrtec they have a record of people saying they have used it safely.)
Good idea, previous poster, to pump and freeze while testing other things...
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Last edited by lunamoth; 08-05-2009 at 11:52 AM.
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Old 08-05-2009, 12:03 PM   #8
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Re: Would you still nurse in my situation?

I would call an LC to check if this drug is listed in Dr. Hales Medications and Mother Milk and go from there. Is there an alternative drug you can use? I would exhaust my options before giving up but thats me and if your LO continues to suffer I would stop but try to get donor milk.
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Old 08-05-2009, 12:03 PM   #9
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Re: Would you still nurse in my situation?

DD had low carnitine levels at birth, so we were both tested and the issue was found to be with me not her. So I was given supplements (pills, Carnitor) to take and assured that there would be no issues with her (that, if anything, it would get her levels into normal normal and not low normal). I stopped taking them when I moved because, honestly, I am horrible at taking pills and with everything going on I just never remember to take them. So I have a stockpile of them and keep meaning to call and find out what I should do. I'm pregnant again and I'm not really willing to take them during pregnancy, since they don't have any information for me.

It never caused any side effects for either of us, so maybe your doc is right and that's not what's causing DS issues. Maybe pump for a week and supplement (with formula) and see if he's still having issues...
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Old 08-05-2009, 12:07 PM   #10
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Re: Would you still nurse in my situation?

At that age a lot of things can cause abdominal problems. I would continue to nurse him and work with my diet to see if that helps . . .
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