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Old 09-12-2009, 07:41 AM   #1
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Advice about sick son - it's long, but I am desperate!

Here is the situation:

When my son was born he had horrible reflux. Constant spitting up, round the clock screaming. Cutting the dairy out of my diet helped and we also put him on Prevacid. It helped, but we definitely still struggled some with gas and reflux.

Once we started with solid food we really had troubles. Everything seemed to upset his stomach and cause constipation. He started crying a lot at night and not sleeping and would kind of writhe around in pain. This was with only feeding him a very small amount in the morning and very gentle foods.

Around 9 months, we started doing better. Two tiny bits of food in the morning and then early after noon (less than an ounce both times), making sure he got lots of fiber, still mainly breast feeding, and he was pooping once a day and sleeping pretty well. He still had the reflux, though and a lot of foods would bother him and if I missed his Prevacid he was miserable.

Then almost three weeks ago he got really sick. High fever and really bad diarrhea. The fever ended a couple of days later but he is still having very loose stools five or six times a day. I cut out all solids and we solely breast fed for about a week and a half. I have tried a couple of times giving him very very small amounts of solid food, but whether or not I give him some solids or just breast feeding we are really struggling. He does okay during the day, just poops a lot, but we are up ALL NIGHT. He never sleeps more than 45 minutes or so. He is crying and screaming and writhing around and passing a lot of gas.

The doctor took a stool sample to test for parasites, but assuming it comes back normal I am not sure what to do.

I have tried to talk to my doc about our stomach problems before and I feel like he blows me off because DS is thriving (30 inches and 26 pounds at nine months). But I feel like something is wrong.

Should I push to see a specialist? I worry that’s going to involve a lot of painful tests. See a chiropractor? Someone else? Give this more time to pass?

If anyone has any advice or has experienced something similar I would love to hear it!

Thank you!!

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Old 09-12-2009, 07:58 AM   #2
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Re: Advice about sick son - it's long, but I am desperate!

we're going through the same thing. I haven't started solids yet-ds is almost 6 months-in fear that more things in his diet would make things worse. DS the past few weeks has been sleeping even worse than normal, he was getting up nearly every hour for about 10 days straight. Our whole house had a bug, which he caught too, he had to be on antiotics, He started having bad diarhrea, and it's gotten better, but he still has had a lot of poo theses past 2 weeks. At the dr yesterday, we were told he looks like a tooth is coming in, which we kind of thought so. Now, what does of Prevacid is your ds on? (We too, use Prevacid) Has ds had an upper GI done? If, not it's a really simple, non-invasive test, basically they have him drink some barium and take x-rays (he is in a funky looking harness though). If that hasn't been done, I'd have the pedi order it-this can very reflux and check a few other things. What other foods have you cut out? Do you use probiotics? I swear by them, I thought they weren't doing anything, but the two times ds was off of them for a few days-it was not good! I'll check back on here, and have a few more suggestions, but ds is fussing and I am just trying to finish pumping. (my little stinker has yet to latch-so I have been exclusively pumping for 6 months!) Hang in there mama, I hope ds gets better soon!
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Old 09-12-2009, 10:31 AM   #3
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Re: Advice about sick son - it's long, but I am desperate!

Thanks for your reply. We take one of those orange dissolvable tabs a day. What do you guys take? How do you do the probiotics? Maybe I should try some of those.
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Old 09-12-2009, 10:35 AM   #4
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Re: Advice about sick son - it's long, but I am desperate!

I have no advice really as I am not familiar with this, when my dd was a baby she had reflux and was put on reglan, it helped her alot and she wasn't on it very long.
I think if your dr is blowing off your concerns, see another dr immediately.
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Old 09-12-2009, 10:38 AM   #5
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Re: Advice about sick son - it's long, but I am desperate!

Did he get better when you cut out all solids? If so, I would suspect allergies. I hope you get this cleared up soon! *hugs*
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Old 09-12-2009, 10:42 AM   #6
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Re: Advice about sick son - it's long, but I am desperate!

Before he got sick I felt like he got better when I cut out solids. Since getting sick he's uncomfortable no matter what I do, even if I just bf.
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Old 09-12-2009, 10:57 AM   #7
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Re: Advice about sick son - it's long, but I am desperate!

I am so sorry, Mama. I really don't have any advice but it seems to me that your DS would be better off seeing another doctor for the time being. You are his mother and you know when something's not right. Just because he's thriving shouldn't be his basis off of 'everything is okay'. Thriving shouldn't hurt I hope you get your answers.
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Old 09-12-2009, 11:14 AM   #8
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Re: Advice about sick son - it's long, but I am desperate!

I would deff, try and see another doctor. Switch all together if possible, you should be able to voice your concerns and they take them seriousely!
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Old 09-12-2009, 11:20 AM   #9
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Re: Advice about sick son - it's long, but I am desperate!

Definitely push to see a specialist. Whether he's thriving or not isn't really the issue. If there is something wrong it needs to be addressed because it could cause serious problems in the future. Not to mention that fact that he clearly is miserable and while it might not be possible to make him perfectly comfortable, there's bound to be something that can help him.
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Old 09-12-2009, 02:13 PM   #10
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Re: Advice about sick son - it's long, but I am desperate!

Quote:
Originally Posted by tallanvor View Post
Definitely push to see a specialist. Whether he's thriving or not isn't really the issue. If there is something wrong it needs to be addressed because it could cause serious problems in the future. Not to mention that fact that he clearly is miserable and while it might not be possible to make him perfectly comfortable, there's bound to be something that can help him.
We've had similar issues here (minus the getting sick part) with all three of my older children. The getting up and night and screaming, writhing still continues at times with my almost three year old. I would totally get a referral to a Ped GI specialist!!!! Your son is having way too many issues to continue seeing his regular doctor. They need to order a scope or upper GI on him and really see what is going on. It sounds like he needs something to repair the damage being done to his GI tract too possibly. My daughter takes Neocate formula which helps repair that....you could still bf and offer this to him too....but I would ask the specialist about it first. We call it liquid gold, it works that well (and none of my kiddos could drink any other formula whatsoever). Bottom line is....this is NOT normal for any child and you need answers. Don't be afraid to put your foot down and demand what you want. It is not ok for your poor baby to be in constant pain.....I would personally park myself in my ped's office and demand a referral. Tell them you are not leaving without one. I've also gone the route of calling over the phone to my ped's office (she's great) and simply saying "I need a referral to a pediatric GI specialist for ________ (child's name)." Usually they will do it no questions asked and everything is taken care of by phone so I don't pay any Dr. copays. You are his advocate since he cannot speak for himself....do not be afraid to be very assertive!! (And do not listen to anyone who tells you this is "normal".....It's NOT!!!!!!!!)
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