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Old 10-09-2009, 08:26 PM   #1
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Question UPDATE: Jacy has Hoshimoto's thyroiditis

I took my 3 year old to the doctor today because I have noticed that her thyroid area looks bigger than it should. The doc said it feels slightly enlarged and ordered blood work. We could only get one vile of blood because she was squirming and screaming so much it was awful.

Now, I am freaking out! I am terrified that it could be something like thyroid cancer. I know that sounds like worst case thinking but I have severe anxiety. I am so worried now. I have an enlarged thyroid with nodules and my grandma has Hoshimioto's.

My daughter seems completely healthy and rather big for her age.

Does anyone have any experience or advice? I am freaking out here...
UPDATE

Her test came back with elevated TSH

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Last edited by ashleynjacy; 10-15-2009 at 01:07 PM.
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Old 10-10-2009, 05:24 AM   #2
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Re: my 3 year old has an enlarged thyroid...need advice

anybody?
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Old 10-10-2009, 08:48 PM   #3
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Re: my 3 year old has an enlarged thyroid...need advice

Its pretty unlikely to be cancer. Don't fret too much - just get yourself a good endocrinologist and see what they say. There are lots of thyroid weirdnesses she might have that won't affect her in the least. (My husband had "nodules" that are actually undifferentiated skin cells. It's a rare birth defect that has no effect on his thyroid function.)

Actually, my husband and I both have thyroid issues. I expect our son will, too, as our endocrinologist said these things tend to run in families. I think I read that thyroid issues are one of the most common "invisible illnesses". I imagine the reason it gets so little press is that the treatments for it are so easy to use and effective. One pill a day and I feel great. (I'm lethargic and chilled without it.)
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Old 10-11-2009, 06:01 AM   #4
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Re: my 3 year old has an enlarged thyroid...need advice

We have a history of thyroid issues in our family, but it goes hand in hand with the celiac. (Most of the family refuses testing because they think it's in our head, or that we don't eat real food)

I have a small "Underactive" thyroid due to the issues surrounding my celiac being undiagnosed for a while, and a couple members in the family have large thyroids..

I had to do bloodwork last year and while I was pregnant with JD, and also had an ultrasound on the thyroid, and things levelled out once my stress levels went down. I've not had to take anything for it or return - my levels are all within normal perameters now.

Just take each day one at a time, get all the testing done and try to not worry. Worry eats at your hormones and vitamin B, and that will cause issues with *your* health.
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Old 10-11-2009, 10:17 AM   #5
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Re: my 3 year old has an enlarged thyroid...need advice

Thanks for the advice. I am just such a nervous wreck. I am going to think positive today. The doc told me to try not to worry...
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Old 10-11-2009, 10:23 PM   #6
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Re: UPDATE in OP my 3 year old has an enlarged thyroid...need advice

test came back with elevated TSH
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Old 10-12-2009, 04:32 AM   #7
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Re: UPDATE in OP my 3 year old has an enlarged thyroid...need advice

Did they say how elevated, or refer you to a dietitian and endocrinologist?
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Old 10-12-2009, 07:24 AM   #8
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Re: UPDATE in OP my 3 year old has an enlarged thyroid...need advice

Quote:
Originally Posted by HadassahSukkot View Post
Did they say how elevated, or refer you to a dietitian and endocrinologist?
They referred us to an endocrinologist. I asked about an ultrasound and they said they didn't think it was necessary yet. I wish they would have just done it. They told me not to worry about cancer because it is so rare...

Her TSH was 7.97 normal is between 0.85-6.46
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Old 10-12-2009, 07:30 AM   #9
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Re: UPDATE in OP my 3 year old has an enlarged thyroid...need advice

Elevated TSH (tyroid stimulating hormone) means that her tyroid is not functioning as well as it should be. Her body is releasing extra hormone into her body in an effort to stimulate it and get it back up to speed. Does that make sense to you?
Most likely they will refer you to a pediatric endocrinologist and put her on Synthroid. Synthroid is a medication that acts like the hormones (t3/t4) that your body releases in response to TSH. The drug is carefully dosed and monitored, since small changes go a long way in getting your body back into balance. There was a more "natural" drug out there called Armour Thyroid, but it is on backorder from every wholesaler, and the manufacturer has not said when they are going to start making it again.
Hoped that helped!
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Old 10-12-2009, 07:30 AM   #10
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Re: UPDATE in OP my 3 year old has an enlarged thyroid...need advice

My husband was hyperthyroid. Cancer is a rare cause. He never had an ultrasound, but did have uptake scans to see how much his thyroid was over working. He had radioactive iodine treatments rather than surgery. He now takes a pill daily to regulate his thyroid hormones now that he is hypo.
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