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Old 06-05-2010, 05:58 PM   #91
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Re: thanatophoric dwarfism? UPDATE

I just read your update on your blog. breaks my heart mama. Your family will all be in my prayers. I don't even have adequate words...

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Old 06-05-2010, 06:04 PM   #92
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Re: thanatophoric dwarfism? UPDATE

this sucks. there aren't even words to describe it. it just. . . . . . . sucks. HARD.


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Old 06-05-2010, 06:15 PM   #93
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Re: thanatophoric dwarfism? UPDATE

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Originally Posted by browneyedgrl2411 View Post
I just read your update on your blog. breaks my heart mama. Your family will all be in my prayers. I don't even have adequate words...
I agree with the pp. OP, still thinking about baby Mark and praying
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Old 06-07-2010, 06:53 PM   #94
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Re: thanatophoric dwarfism? UPDATE

a mama posted this on my blog, and I think it is just wonderful...I think I might read it at his service because it so absolutly true and perfect:

I would have chosen...
If before you were born I could have gone to Heaven to see all of the beautiful souls,

I still would have chosen you.

If God had told me that this soul would one day need extra care,

I still would have chosen you.

If He had told me that one day this soul may make my heart bleed,

I still would have chosen you.

If He had told me that this soul would make me question the depth of my faith,

I still would have chosen you.

If He had told me that this soul would make tears flow from my eyes that would overflow a river,

I still would have chosen you.

If He had told me that our time spent together here on Earth could be short,

I still would have chosen you.

If He told me that this soul may one day make me endure overbearing suffering,

I still would have chosen you.

If He had told me that all that I know to be normal would drastically change,

I still would have chosen you.

Of course, even though I would have chosen you, I know it was God who chose me for you.

Thank you, God, for allowing me to be his Mommy.

Author Unknown.
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Old 06-07-2010, 06:57 PM   #95
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Re: thanatophoric dwarfism? UPDATE

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Originally Posted by ecoMama2b View Post
a mama posted this on my blog, and I think it is just wonderful...I think I might read it at his service because it so absolutly true and perfect:

I would have chosen...
If before you were born I could have gone to Heaven to see all of the beautiful souls,

I still would have chosen you.

If God had told me that this soul would one day need extra care,

I still would have chosen you.

If He had told me that one day this soul may make my heart bleed,

I still would have chosen you.

If He had told me that this soul would make me question the depth of my faith,

I still would have chosen you.

If He had told me that this soul would make tears flow from my eyes that would overflow a river,

I still would have chosen you.

If He had told me that our time spent together here on Earth could be short,

I still would have chosen you.

If He told me that this soul may one day make me endure overbearing suffering,

I still would have chosen you.

If He had told me that all that I know to be normal would drastically change,

I still would have chosen you.

Of course, even though I would have chosen you, I know it was God who chose me for you.

Thank you, God, for allowing me to be his Mommy.

Author Unknown.
That was me!! Glad you liked it
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Old 06-07-2010, 07:01 PM   #96
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Re: thanatophoric dwarfism? UPDATE

yes I LOVE it...it makes me cry everytime I read it, but because it's so amazing...thank you mama
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Old 06-07-2010, 07:07 PM   #97
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Re: thanatophoric dwarfism? UPDATE

Tiny Angels rest your wings
sit with me for awhile.
How I long to hold your hand,
And see your tender smile.
Tiny Angel, look at me,
I want this image clear....
That I will forget your precious face
Is my biggest fear.
Tiny Angel can you tell me,
Why you have gone away?
You weren't here for very long....
Why is it, you couldn't stay?
Tiny Angel shook his head,
"These things I do not know....
But I do know that you love me,
And that I love you so".

Author Unknown

this was the other one I have.....
I used to work in hospice, an I kept these two poems in my binder....always gave me some comfort
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Old 06-07-2010, 08:03 PM   #98
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Re: thanatophoric dwarfism? UPDATE

Just thinking of you this evening and wanted to let you know
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Old 06-07-2010, 10:05 PM   #99
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Re: thanatophoric dwarfism? UPDATE

I am sending prayers your way. My heart breaks for you. You are so incredible strong.

And, he does have a handsome profile. One of the handsomest US profiles I have seen.

Have you heard about the program, Now I Lay Me Down to Sleep? There are photographers that donate their time and talents to photographing your time with him.

http://www.nowilaymedowntosleep.org/about_us/
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Old 06-07-2010, 10:23 PM   #100
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Re: thanatophoric dwarfism? UPDATE

A beautiful son that is so lucky to have your unconditional love!
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I have 10 $5 off Nutramigen 12.6 or 19.8 oz powdered formula COUPONS (not checks) exp 12/31/11 for trade. ISO anything girly, bamboo fitteds (8 month old girl) or boyish or gn trainers (pull up, no snaps) for 2.5 year old son. I have over 20 BG 3.0s, PM with interest!
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