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Old 06-07-2010, 10:29 PM   #101
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Re: thanatophoric dwarfism? UPDATE

May God provide you with a miracle.
I believe that all children that die before their time are in heaven with prophet Abraham, he watches them until child reunites with its parents.
im sure you will hold your little boy and get to look into his eyes and smother him with your kisses, but also know that God is the planner and knows what is best for you and your family. there must be some unseen Good that will come out of all this.
**hugs mama**

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Old 06-07-2010, 11:42 PM   #102
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Re: thanatophoric dwarfism? UPDATE

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Old 06-08-2010, 12:39 AM   #103
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Re: thanatophoric dwarfism? UPDATE

i too had an ultrasound with not so good news and i remember just feeling like a rock dropped on my chest. your family will be in my prayers!
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Old 06-08-2010, 06:12 AM   #104
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Re: thanatophoric dwarfism? UPDATE

I am so sorry for all that you are going through. I will say a prayer for you and your little one. I don't have time to go through all of your posts so I'm not sure if you've found anyone else. I just read a post from a mama in a facebook group who also has this same condition with her baby. She is in the Obstetric Cholestasis group and just posted yesterday, I believe she is about the same time along as you are.
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Old 06-08-2010, 06:38 AM   #105
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Re: thanatophoric dwarfism? UPDATE

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Originally Posted by sjebillings View Post
I am so sorry for all that you are going through. I will say a prayer for you and your little one. I don't have time to go through all of your posts so I'm not sure if you've found anyone else. I just read a post from a mama in a facebook group who also has this same condition with her baby. She is in the Obstetric Cholestasis group and just posted yesterday, I believe she is about the same time along as you are.
yes that is me! LOL
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Old 06-08-2010, 06:53 AM   #106
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Re: thanatophoric dwarfism? UPDATE

I'm so sorry mama!
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Old 06-08-2010, 06:57 AM   #107
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Re: thanatophoric dwarfism? UPDATE

Quote:
Originally Posted by zacks_mommy View Post
Tiny Angels rest your wings
sit with me for awhile.
How I long to hold your hand,
And see your tender smile.
Tiny Angel, look at me,
I want this image clear....
That I will forget your precious face
Is my biggest fear.
Tiny Angel can you tell me,
Why you have gone away?
You weren't here for very long....
Why is it, you couldn't stay?
Tiny Angel shook his head,
"These things I do not know....
But I do know that you love me,
And that I love you so".

Author Unknown

this was the other one I have.....
I used to work in hospice, an I kept these two poems in my binder....always gave me some comfort
This is also so beautiful...I will keep this one as well because Im sure I will want to read a few...thanks again mama
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Old 06-08-2010, 05:52 PM   #108
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Re: thanatophoric dwarfism? UPDATE

I'm so sorry again. I hope the doctors give you help with the OC quickly.
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Old 06-08-2010, 11:38 PM   #109
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Re: thanatophoric dwarfism? UPDATE

Oh, hugs mama. I am so sorry
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Old 06-13-2010, 06:02 PM   #110
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Re: thanatophoric dwarfism? UPDATE

I'm so sorry hun!!! You are being so brave!
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